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Living in limbo…MS or NMO?
Hi everyone my name is Micky i am a 38 year old father of 2,living in Norway. 1 My story began in 2007 when i lost the feeling in my left thigh. It was not at all painful so i didnt visit my doctor to check it out and regained feeking a couple of months…
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An Opportunity to do Something Great
My story starts in April, 2009. One day while I was on a class trip to Washington, DC I woke up with a very bad headache and blurred vision. When I got home, I went to the ophthalmologist, who sent me directly to the emergency room because my optic discs where very swollen. I spent…
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Riley’s Story…it all began a year ago…
This is the story of my son Riley’s journey so far with NMO. The story began July 31, 2011…this is my facebook post a year later on July 31,2012… It’s hard to believe that one year ago today it all began. I remember it well…hearing a glass hit the bathroom floor and running in to…
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Diagnosed maybe NMO
Hello All, it has been so great to have the opportunity to read the many stories and hurdles many of you have shared. I wanted to ask if any one has had the same type situation or simliar conditions. I am told I have NMO. I do not have any eye involvement, nor do I…
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NMO and Breast Cancer!
I first became very sick in August of 2009 dealing with various symptoms prior to my 2010 diagnosis of Neuromyelitis Optica (NMO). Serious symptoms of NMO lasted for about ten months; I was first unable to digest food, had loss of vision, and was temporarily paralyzed and dependent on wheelchairs and walker. I spent 10…
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What do you mean??
I was diagnosed with a form of MS in 1999 at the age of 19. I was by no means surprised by the diagnosis because my mother had been diagnosed with it in 1990. However, my symptoms were not textbook to say the least. I have gone through about 20 bouts of optic neuritis with…
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My NMO Journey
MY NMO JOURNEY I was once a woman who felt she could tackle anything that came her way. I lost my husband 13 years ago and had to go out and find new employment. He was a Pastor and I ran our Christian school. After being 30 years out of the work force it was…
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Nicole Barnes Story
In my early 20’s I was working when I noticed I had a bruise as well as a pain in my abdomen area. It elt like I had been doing crunches, and since I hadn’t I was concerned. I went to the hospital where they ran numerous tests and discovered I had something called ITP.…
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NMO??? Yes I have it.
My journey began in 1997 when I was just 17 years old but I didn’t know at that time. I had lost my vision in my left eye for about 5 days and I was given prednisone treatments to restore it. Over the years I did suffer with blurred vision at times but it would…
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My Fighting Princess
My daughter Briannen is now 12 years old and this is her story – I would like to say this is the first time i have written it all down and sorry it is to long lol She was a healty child until……. December 2011 Just before christmas Briannen got really bad tonsillitis with high…
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Martin’s Story
One night my husband went to bed a healthy 41 year old then found himself next morning in intensive care paralyzed from the jaw down unable to speak or breathe for himself. Three weeks later we had a diagnosis – NMO. Three years later (one year in hospital) he is home with his family thanks…
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Kenneth Clarke
In 1975 I was a 41 year old career oriented business man with athletic skills and aggressive personal goals. Until, one Sunday morning following an active day of skiing I awoke with a nagging pain in my left eye and blurred vision. I first attributed these symptoms as effects of the stress of activities the…
