Caregivers

When Gary and I got married in 1983, we did not know that a disease was looming in his body. On Feb 2, 1984, Gary was kicked in the head by a cow, as he worked as a cowboy on a farm. Scary, but nothing came out of the kick except a slight concussion and…

This is the story of my son Riley’s journey so far with NMO. The story began July 31, 2011…this is my facebook post a year later on July 31,2012… It’s hard to believe that one year ago today it all began. I remember it well…hearing a glass hit the bathroom floor and running in to…

My daughter Briannen is now 12 years old and this is her story – I would like to say this is the first time i have written it all down and sorry it is to long lol She was a healty child until……. December 2011 Just before christmas Briannen got really bad tonsillitis with high…

One night my husband went to bed a healthy 41 year old then found himself next morning in intensive care paralyzed from the jaw down unable to speak or breathe for himself. Three weeks later we had a diagnosis – NMO. Three years later (one year in hospital) he is home with his family thanks…

Better days ahead… “Because I am still in love with you… I want to see you dance again…” Today I danced with Maria… ! Just the way it is… once you realize your new way of life there is no other choice but to adapt and continue… living day to day, step by step, enjoying…

My daughter Nadia Santos is 26 years old. She is a wife and a mother of a three year old. Nadia’s symptoms began in September in and out of emergency rooms, Nadia’s symptoms continued to progress from weakness, nausea, vomiting, fever, blurry vision and loss of motor skills on her entire right side. The left…

Hello! I would like to share my daughter’s story. McKenzie was 13 when we first were told she may have NMO. It was September 2014, when she first got sick. Her’s began with vomiting every day, like most I thought it was as stomach virus so we just dealt with it for a few days.…