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Rare to the Rescue

  • Rare disease has taught me to live one day at a time

    My life changed a few months ago when I heard doctors tell me they had a diagnosis for every weird and unexplained symptom I’ve had in the last 6 months. At some point I felt like I went crazy, because I felt so exhausted, constant headaches, unexplained nausea, some skin rash that was really bothersome,…

  • I’ve had NMO 12 years

    I was diagnosed with NMO August 2nd, 2009. It all started in my opinion nerve in my left eye. Every time I had a flare up I would have IV prednisone and that would help. I Hasan MRI of my brain to see if I had MS. That came back negative. This all started in…

  • Hear My Voice | Julie & Robert Waller

    Hear My Voice | Julie & Robert Waller

  • Hear My Voice | Barry & Sharon Shapiro

    Hear My Voice | Barry & Sharon Shapiro

  • Hear My Voice | Natasha Polo

    Hear My Voice | Natasha Polo

  • Hear My Voice | Jesus & Maria Loreto (Spanish)

    Hear My Voice | Jesus & Maria Loreto (Spanish)

  • Hear My Voice | Laura May

    Hear My Voice | Laura May

  • Hear My Voice | Jesus & Maria Loreto (English)

    Hear My Voice | Jesus & Maria Loreto (English)

  • Hear My Voice | Doug & Holly Kirby

    Hear My Voice | Doug & Holly Kirby

  • Hear My Voice | Kim Jackson-Matthews

    Hear My Voice | Kim Jackson-Matthews

  • Hear My Voice | Michelle Dean

    Hear My Voice | Michelle Dean

  • Hear My Voice | Deneisha Ellis

    Hear My Voice | Deneisha Ellis

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