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NMO & COVID
Hi everybody! I wanted to tell my mom’s story with both diseases, because even though it was really dificult, we were able to get through it together. My mom was diagnosed with NMO around 2010, when she was 53 years old. Suddenly her body went numb, and she couldn’t move at all. During all these…
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Monica’s Story
My story with NMO. Im 43 years old and was diagnosed with lupus about 12 years ago. I’ve since then have had half my thyroid removed and had ovarian failure when I was in my late 20’s. Overall I’ve managed lupus well which I take plaquenil and courses of steroids when I have flares. In…
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Diagnosed 5-19-2021
My story begins on February 16th, 2021. I have spent 40 years in public service and was approximately 2 months from retirement. On this particular day, I received a medical procedure from my orthopedics to numb the nerves in my neck for a pain assement review. The following day, I recieved the first moderna covid…
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My Story
I had my daughter in July of 2011, in November I noticed when at a stop sign when I darted my eyes left to right to look for cars I was having pain in my eyeballs literally. If felt like the were being pulled from their sockets. I summed it up to having 3 young children. When it started to bother me,…
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On a long quest to cure myself (22F, Southeast Asian)
Where I’m from, our medical literacy rates just shyly reach 1%. Our country doesn’t get involved with much R&D, especially in the medicine section. Many of the community still believe in pseudo-science just because it sounds ambiguously scientific. I was 17 in 2015, my senior year of high school, and I was gearing up for…
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Well…….This is Inconvenient
Diagnosis: AQP4-IgG seronegative NMOSD (NMOSD with no antibodies) So here’s my story….. Buckle up! First, some background; I’m a Hispanic female, current age: 38.5. I’ve been an athlete since birth, parents made sure we ate fresh healthy foods. Always water or fresh juice and milk.. Never really had junk etc, until my step mum came…
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How? I was SO healthy!
For a year I was super healthy, dropped 100lbs and was well on my way to my dream career. In the matter of 3 months, my entire life had changed. For 2 months my doctor ran every test they could think of while I had dropped almost 30 lbs from the inability to keep anything…
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Spouse of the hidden illness
Unfortunately my story comes with no happy ending. My wife was 28 when she was formally diagnosed with NMO we have 3 beautiful children together. It took us years and many doctors to be able to find us some answers many doctors said they have no idea how to treat her then others kept on…
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A new Journey with NMO
Hello world of NMO Around August 2019 changes started happening in my body that were foreign to me. By process of elimination and common logic, I wrote it up to stress, change in seasons, my new hobby for running. By the time I went on holiday in October, my right hand was shaky. Still I…
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NMO STORIES AROUND THE GLOBE
Rare to the Rescue
