NMO STORIES AROUND THE GLOBE

Aloha! I was diagnosed with N.M.O. on Aug of 2014. Was somewhat retiring, when I started helping a friend run a paintball field. After about ten years of working there, I was hit below my right ear, near my neck and spine. 30 min after I left the field, my right arm started to go numb. Then…

It has been a very tough frustrating road.  In 1996 I was walking down the hallway at work and just fell over to the left sideways and hit the wall. This started a chain of events that I will never forget. I was sent to an ENT doctor who said I had Vertigo but NOT…

I was finishing my last two years of high school, cramming as many academic courses into my workload as I could, not to mention multiple extracurricular activities and working at a local pizza shop. I was the perfect example of the shiny student off to bigger and better things than the small country town where…

I was diagnosed in June 2013. The first attack occurred in 2005 after the birth of my daughter in Feb. my right eye got very swollen & Dr.s could not figure things out. I went to a few specialists and was getting clue to having surgery. Finally, a Russian Dr. Stated it was a clog…

It is a day I will never forget. I woke up at 3am on Oct 4, 2012 with a fiery burning, sever pain that ran down from the base of my neck to the end of my rib cage and out like a fiery angel wing pattern across my back. It was unlike any pain…

I was diagnosed with Pseudo tumor in 2003 by one doc and another said MS. I had optic neuritis in right eye and spots in the brain matter. Neg spinal fluid test for MS. A shunt was placed for draining spinal fluid. I lost most of the vision in my right eye and rarely felt…

My NMO experience is minimal as I was just diagnosed on June 22, 2010. I was originally diagnosed with Multiple Sclerosis (MS) on October 29, 2009. I started Copaxone on November 7, 2009 to help slow the progression of MS. I’ve been having vision issues for about two years now and it’s progressively getting worse.…

Hi, my name is Dionne Cooper i am a Hairstylist/CNA. I was a healthy 38 year old woman until March 2009, I was diagnosed in September 2009 with NMO. I had just got a form working at a local Hospitsl the night before, I had awaken the next morning with a pain so bad in…

Hello my name is Cathy, and I have a 9yr old daughter named Alicia whom was just recently diagnosed with NMO in Nov of 2011. We live here in Colorado, and to my knowledge this is a rare disease. It all started in 2007 she started having eye pain in her left eye, and her…

In October of 2010, just weeks shy of my 40th birthday I rode a 115 mile bike ride in the Nevada desert. It was the most extraordinary physical thing I have ever done, and at the finish line I scared my husband by bursting into tears. I was just so overwhelmed at what I’d been…

December 2004- I was a typical 22 year old college student, getting ready for final exams and anticipating heading home for the holiday season to spend time with my family and friends. I was feeling a bit under the weather, typical flu like symptoms and therefore I didn’t put too much mind to my illness.…