NMO Stories

My NMO Journey

MY NMO JOURNEY I was once a woman who felt she could tackle anything that came her way. I lost my husband 13 years ago and had to go out and find new employment. He was a Pastor and I ran our Christian school. After being 30 years out of the work force it was…
Nicole Barnes Story

In my early 20’s I was working when I noticed I had a bruise as well as a pain in my abdomen area. It elt like I had been doing crunches, and since I hadn’t I was concerned. I went to the hospital where they ran numerous tests and discovered I had something called ITP.…
NMO??? Yes I have it.

My journey began in 1997 when I was just 17 years old but I didn’t know at that time. I had lost my vision in my left eye for about 5 days and I was given prednisone treatments to restore it. Over the years I did suffer with blurred vision at times but it would…
My Fighting Princess

My daughter Briannen is now 12 years old and this is her story – I would like to say this is the first time i have written it all down and sorry it is to long lol She was a healty child until……. December 2011 Just before christmas Briannen got really bad tonsillitis with high…
Martin’s Story

One night my husband went to bed a healthy 41 year old then found himself next morning in intensive care paralyzed from the jaw down unable to speak or breathe for himself. Three weeks later we had a diagnosis – NMO. Three years later (one year in hospital) he is home with his family thanks…
Kenneth Clarke

In 1975 I was a 41 year old career oriented business man with athletic skills and aggressive personal goals. Until, one Sunday morning following an active day of skiing I awoke with a nagging pain in my left eye and blurred vision. I first attributed these symptoms as effects of the stress of activities the…
Better days ahead… a day in the life of Jesus & Maria

Better days ahead… “Because I am still in love with you… I want to see you dance again…” Today I danced with Maria… ! Just the way it is… once you realize your new way of life there is no other choice but to adapt and continue… living day to day, step by step, enjoying…
And give me the wisdom…

My name is Francisco Garcia. I wanted to share my story. I am really bad with dates. So, some of the information may not be chronologically perfect, but my feelings and experiences are engraved in my memories like it was yesterday. I will start when me and my wife, arrived in Texas in October of…
My Ester

My daughter Nadia Santos is 26 years old. She is a wife and a mother of a three year old. Nadia’s symptoms began in September in and out of emergency rooms, Nadia’s symptoms continued to progress from weakness, nausea, vomiting, fever, blurry vision and loss of motor skills on her entire right side. The left…
From MS to NMO – a mysterious journey

My name is Kimberly. I started this journey in the summer of 1996. Water from the sprinkler felt hot on my legs. It actually felt like it was burning. Then I noticed that my legs were numb so I went to the doctor. The first doctor I saw asked me a bunch of questions….anything bad…
Things I have learned

” My first symptoms of NMO was on Dec 22, 2013 with optic neuritis. I was eventually diagnosed in April 2014, and started imuran and prednisone after my second attack of optic neuritis. It is only been 4 months since starting treatment and I realize that it is totally unpredictable. I am praying and trusting…
My Independence Day….What you need to know!

It has been over 2 years now when i became diagnosed with Neuromyelitis Optica (NMO). I like to refer to it as my Independence Day. Neuromyelitis Optica (NMO) is NOT Multiple Sclerosis! NMO is a rare, usually relapsing, inflammatory demyelinating disorder that primarily targets the optic nerve and the spinal cord. That being said, NMO…

NMO STORIES AROUND THE GLOBE