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An Opportunity to do Something Great
My story starts in April, 2009. One day while I was on a class trip to Washington, DC I woke up with a very bad headache and blurred vision. When I got home, I went to the ophthalmologist, who sent me directly to the emergency room because my optic discs where very swollen. I spent…
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Living in limbo…MS or NMO?
Hi everyone my name is Micky i am a 38 year old father of 2,living in Norway. 1 My story began in 2007 when i lost the feeling in my left thigh. It was not at all painful so i didnt visit my doctor to check it out and regained feeking a couple of months…
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Life Sucks but you got to laugh!!
A strange title you may think, but it is true. Life has thrown you a bad hand, and it does suck, but you have to ensure you keep smiling and laughing!! Just think for any disabled or able bodied person the day they sit on the couch stuffing their faces and doing nothing makes them…
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NMO…My Journey
My life changed on March 21st 2011 when this horrific disease attacked me. I had just come back from the west coast of Florida for Spring Break with my family when I noticed I was having some back pain. I had run on the beach everyday with my sister so I attributed it to that.…
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Gary’s 30 year Journey
When Gary and I got married in 1983, we did not know that a disease was looming in his body. On Feb 2, 1984, Gary was kicked in the head by a cow, as he worked as a cowboy on a farm. Scary, but nothing came out of the kick except a slight concussion and…
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The Life of a Twenty-Something Living with NMO
December 2004- I was a typical 22 year old college student, getting ready for final exams and anticipating heading home for the holiday season to spend time with my family and friends. I was feeling a bit under the weather, typical flu like symptoms and therefore I didn’t put too much mind to my illness.…
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From 10 hours to 20 minutes
In October of 2010, just weeks shy of my 40th birthday I rode a 115 mile bike ride in the Nevada desert. It was the most extraordinary physical thing I have ever done, and at the finish line I scared my husband by bursting into tears. I was just so overwhelmed at what I’d been…
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Alicia Pelc
Hello my name is Cathy, and I have a 9yr old daughter named Alicia whom was just recently diagnosed with NMO in Nov of 2011. We live here in Colorado, and to my knowledge this is a rare disease. It all started in 2007 she started having eye pain in her left eye, and her…
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Dionne Cooper Hairstylist/CNA with NMO
Hi, my name is Dionne Cooper i am a Hairstylist/CNA. I was a healthy 38 year old woman until March 2009, I was diagnosed in September 2009 with NMO. I had just got a form working at a local Hospitsl the night before, I had awaken the next morning with a pain so bad in…
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My Journey to My NMO Diagnosis
My NMO experience is minimal as I was just diagnosed on June 22, 2010. I was originally diagnosed with Multiple Sclerosis (MS) on October 29, 2009. I started Copaxone on November 7, 2009 to help slow the progression of MS. I’ve been having vision issues for about two years now and it’s progressively getting worse.…
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My Journey MS/NMO
I was diagnosed with Pseudo tumor in 2003 by one doc and another said MS. I had optic neuritis in right eye and spots in the brain matter. Neg spinal fluid test for MS. A shunt was placed for draining spinal fluid. I lost most of the vision in my right eye and rarely felt…
