Hear My Voice | Tamanika Zinger

4 Comments

  1. Trish Lucero on February 2, 2024 at 1:45 am

    Thank you for story

  2. Debra Haywood on February 15, 2024 at 1:49 am

    I really don’t know what the comments I just got diagnosed with this. I’m so glad to hear you got your hearing back and you are again walking. About 4 years ago I became sick with a cold I woke up the next day and at the hospital I couldn’t hear you no one knew what was wrong in 2022 I lost my vision and my Vision in my left eye eye doctor thought I had dry eyes they finally did MRI and a spinal tap just started treatment I don’t know too much about it have been listening to stories thank you for sharing trying to get educated about it

  3. Debra Haywood on February 15, 2024 at 1:50 am

    I really don’t know what the to comments I just got diagnosed with this. I’m so glad to hear you got your hearing back and you are again walking. About 4 years ago I became sick with a cold I woke up the next day and at the hospital I couldn’t hear you no one knew what was wrong in 2022 I lost my vision and my Vision in my left eye eye doctor thought I had dry eyes they finally did MRI and a spinal tap just started treatment I don’t know too much about it have been listening to stories thank you for sharing trying to get educated about it

  4. Lynette Scriber on October 27, 2024 at 1:28 pm

    Thanks for sharing 💜My daughter’s name is Miracle and she’s 21. She was diagnosed in 2020 with NMO. It took 5 months to get this diagnosis. At first they said it vertigo because of the spinning and nausea she was experiencing. Then it got worse .Her vision, hearing and balance was leaving. We spent Christmas of 2019 in the hospital for 9 days. She was treated with steroids for vertigo. Which probably saved her life. In March 2020 it happened again . This time it was worst. I was not taking the vertigo diagnosis anymore, because I knew it something more. My child was dying. Vomiting all day for over a week. Being told it was a virus. I wasn’t gonna take her back home like this. Finally a MRI revealed the truth. Being admitted to the hospital the specialist still didn’t know what to call this .5 more day in hospital being treated with steroids and having all kind of test including a spinal tap. Only for them to tell us what she didn’t have. After being discharged, a few days later they called to tell us that it is NMO! They asked if she would be part of a study, and we agreed. They started her on Retuximab infusions twice a year. It was to kill her b cells to stop relapses from occurring. Thank God it worked. Miracle hasn’t had anymore relapses and everything looks normal. She’s now on a daily pill, and so far so good. She’s engaged to be married and want to eventually have a child. I don’t know if that would be safe for her, but her mind is made up. If anyone has experienced being pregnant and delivered safely with NMO, please speak up. I would really appreciate it. Thanks for reading 🩷
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