My New Normal


My story started after having a flu shot. I worked in the pharmacy for years so fyou got them so you wouldn’t get sick.  I receieved my shot on Oct 1st , 2015. Week later I got sick with flu like symptoms, but flu test was negative. Within 4 days I felt better.  I notice I was having burning pain in my back across my shoulder blades. I went to my PCP  he thought I  pull  or tweeked a muscle . I was given  800 mg motrin. The pain stopped. The next week I notice right under my breast was hurting. I thought my bra had shrunk in the dryer and it felt really tight. In a couple of days it stopped. Then my eyes started hurting . I attribute it to I worked on computers and having to read alot at work.  I went to get new glasses.  My legs started tingling and  my knees was so weak I couldn’t bend down to pick up anything off the floor. I went to my PCP. He diagnosed pinched nerve and gave me gabapentin.  I then started having problems with my bladder and bowels.  I woke up one morning and I had no sensation in my left leg. I went back to my PCP and he sent me to  the hospital. I was lucky to have the medical care. After many test a neurologist talked to me about my history and after we talked he sent me down for MRI, CT scan and Lumbar puncture. He diagnosed me with transverse myelitis. They started me on steroids.  After I got out the hospital  I went

 to a neurologist I took blood test and that is when I was diagnosed with NMOSD.  I  went  plasma exchange for 3 months, and rituxan. I have relapsing NMO.  All of my symptoms occurred from October 1, 2015 – December 30, 2015.  Since my diagnoses I have had 3 relapses. I have my rituxumb every 6 months . I am now disabled and trying to live my best new normal.

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