Patients

Hello my name is Cathy, and I have a 9yr old daughter named Alicia whom was just recently diagnosed with NMO in Nov of 2011. We live here in Colorado, and to my knowledge this is a rare disease. It all started in 2007 she started having eye pain in her left eye, and her…

Hi, my name is Dionne Cooper i am a Hairstylist/CNA. I was a healthy 38 year old woman until March 2009, I was diagnosed in September 2009 with NMO. I had just got a form working at a local Hospitsl the night before, I had awaken the next morning with a pain so bad in…

My NMO experience is minimal as I was just diagnosed on June 22, 2010. I was originally diagnosed with Multiple Sclerosis (MS) on October 29, 2009. I started Copaxone on November 7, 2009 to help slow the progression of MS. I’ve been having vision issues for about two years now and it’s progressively getting worse.…

I was diagnosed with Pseudo tumor in 2003 by one doc and another said MS. I had optic neuritis in right eye and spots in the brain matter. Neg spinal fluid test for MS. A shunt was placed for draining spinal fluid. I lost most of the vision in my right eye and rarely felt…

It is a day I will never forget. I woke up at 3am on Oct 4, 2012 with a fiery burning, sever pain that ran down from the base of my neck to the end of my rib cage and out like a fiery angel wing pattern across my back. It was unlike any pain…

I was diagnosed in June 2013. The first attack occurred in 2005 after the birth of my daughter in Feb. my right eye got very swollen & Dr.s could not figure things out. I went to a few specialists and was getting clue to having surgery. Finally, a Russian Dr. Stated it was a clog…

I was finishing my last two years of high school, cramming as many academic courses into my workload as I could, not to mention multiple extracurricular activities and working at a local pizza shop. I was the perfect example of the shiny student off to bigger and better things than the small country town where…

MY NMO JOURNEY I was once a woman who felt she could tackle anything that came her way. I lost my husband 13 years ago and had to go out and find new employment. He was a Pastor and I ran our Christian school. After being 30 years out of the work force it was…

Sometimes I think I could write a book about my story with NMO. I was 21 years old at the time, and it was the end of summer before I was ready to start my third year of university. I woke up one day and noticed that I was dragging my left leg around, it…

It has been over 2 years now when i became diagnosed with Neuromyelitis Optica (NMO). I like to refer to it as my Independence Day. Neuromyelitis Optica (NMO) is NOT Multiple Sclerosis! NMO is a rare, usually relapsing, inflammatory demyelinating disorder that primarily targets the optic nerve and the spinal cord. That being said, NMO…

” My first symptoms of NMO was on Dec 22, 2013 with optic neuritis. I was eventually diagnosed in April 2014, and started imuran and prednisone after my second attack of optic neuritis. It is only been 4 months since starting treatment and I realize that it is totally unpredictable. I am praying and trusting…