Patients

” My first symptoms of NMO was on Dec 22, 2013 with optic neuritis. I was eventually diagnosed in April 2014, and started imuran and prednisone after my second attack of optic neuritis. It is only been 4 months since starting treatment and I realize that it is totally unpredictable. I am praying and trusting…

I first became very sick in August of 2009 dealing with various symptoms prior to my 2010 diagnosis of Neuromyelitis Optica (NMO). Serious symptoms of NMO lasted for about ten months; I was first unable to digest food, had loss of vision, and was temporarily paralyzed and dependent on wheelchairs and walker. I spent 10…

It has been over 2 years now when i became diagnosed with Neuromyelitis Optica (NMO). I like to refer to it as my Independence Day. Neuromyelitis Optica (NMO) is NOT Multiple Sclerosis! NMO is a rare, usually relapsing, inflammatory demyelinating disorder that primarily targets the optic nerve and the spinal cord. That being said, NMO…

I was finishing my last two years of high school, cramming as many academic courses into my workload as I could, not to mention multiple extracurricular activities and working at a local pizza shop. I was the perfect example of the shiny student off to bigger and better things than the small country town where…

I was diagnosed with a form of MS in 1999 at the age of 19. I was by no means surprised by the diagnosis because my mother had been diagnosed with it in 1990. However, my symptoms were not textbook to say the least. I have gone through about 20 bouts of optic neuritis with…

Sometimes I think I could write a book about my story with NMO. I was 21 years old at the time, and it was the end of summer before I was ready to start my third year of university. I woke up one day and noticed that I was dragging my left leg around, it…

I was diagnosed in June 2013. The first attack occurred in 2005 after the birth of my daughter in Feb. my right eye got very swollen & Dr.s could not figure things out. I went to a few specialists and was getting clue to having surgery. Finally, a Russian Dr. Stated it was a clog…

MY NMO JOURNEY I was once a woman who felt she could tackle anything that came her way. I lost my husband 13 years ago and had to go out and find new employment. He was a Pastor and I ran our Christian school. After being 30 years out of the work force it was…

It is a day I will never forget. I woke up at 3am on Oct 4, 2012 with a fiery burning, sever pain that ran down from the base of my neck to the end of my rib cage and out like a fiery angel wing pattern across my back. It was unlike any pain…

In my early 20’s I was working when I noticed I had a bruise as well as a pain in my abdomen area. It elt like I had been doing crunches, and since I hadn’t I was concerned. I went to the hospital where they ran numerous tests and discovered I had something called ITP.…

My journey began in 1997 when I was just 17 years old but I didn’t know at that time. I had lost my vision in my left eye for about 5 days and I was given prednisone treatments to restore it. Over the years I did suffer with blurred vision at times but it would…