• From Hospice RN to Disabled in a Day

    From Hospice RN to Disabled in a Day

    It is a day I will never forget. I woke up at 3am on Oct 4, 2012 with a fiery burning, sever pain that ran down from the base of my neck to the end of my rib cage and out like a fiery angel wing pattern across my back. It was unlike any pain…

  • Nicole Barnes Story

    Nicole Barnes Story

    In my early 20’s I was working when I noticed I had a bruise as well as a pain in my abdomen area. It elt like I had been doing crunches, and since I hadn’t I was concerned. I went to the hospital where they ran numerous tests and discovered I had something called ITP.…

  • A Four Year Old with Devics

    Hi I am Suzie Mum to Niamh. We are based in the UK. Niamh was five years old a few days ago and spent her birthday in Hospital. Niamh was a pretty normal child until last November 2005. She had had a few health problems since birth with an abnormality called choanal atresia where her…

  • NMO??? Yes I have it.

    NMO??? Yes I have it.

    My journey began in 1997 when I was just 17 years old but I didn’t know at that time. I had lost my vision in my left eye for about 5 days and I was given prednisone treatments to restore it. Over the years I did suffer with blurred vision at times but it would…

  • My Journey MS/NMO

    My Journey MS/NMO

    I was diagnosed with Pseudo tumor in 2003 by one doc and another said MS. I had optic neuritis in right eye and spots in the brain matter. Neg spinal fluid test for MS. A shunt was placed for draining spinal fluid. I lost most of the vision in my right eye and rarely felt…

  • Kenneth Clarke

    Kenneth Clarke

    In 1975 I was a 41 year old career oriented business man with athletic skills and aggressive personal goals. Until, one Sunday morning following an active day of skiing I awoke with a nagging pain in my left eye and blurred vision. I first attributed these symptoms as effects of the stress of activities the…

  • My Journey to My NMO Diagnosis

    My Journey to My NMO Diagnosis

    My NMO experience is minimal as I was just diagnosed on June 22, 2010. I was originally diagnosed with Multiple Sclerosis (MS) on October 29, 2009. I started Copaxone on November 7, 2009 to help slow the progression of MS. I’ve been having vision issues for about two years now and it’s progressively getting worse.…

  • And give me the wisdom…

    And give me the wisdom…

    My name is Francisco Garcia. I wanted to share my story. I am really bad with dates. So, some of the information may not be chronologically perfect, but my feelings and experiences are engraved in my memories like it was yesterday. I will start when me and my wife, arrived in Texas in October of…

  • Dionne Cooper Hairstylist/CNA with NMO

    Dionne Cooper Hairstylist/CNA with NMO

    Hi, my name is Dionne Cooper i am a Hairstylist/CNA. I was a healthy 38 year old woman until March 2009, I was diagnosed in September 2009 with NMO. I had just got a form working at a local Hospitsl the night before, I had awaken the next morning with a pain so bad in…

  • From MS to NMO – a mysterious journey

    From MS to NMO – a mysterious journey

    My name is Kimberly. I started this journey in the summer of 1996. Water from the sprinkler felt hot on my legs. It actually felt like it was burning. Then I noticed that my legs were numb so I went to the doctor. The first doctor I saw asked me a bunch of questions….anything bad…

  • Alicia Pelc

    Alicia Pelc

    Hello my name is Cathy, and I have a 9yr old daughter named Alicia whom was just recently diagnosed with NMO in Nov of 2011. We live here in Colorado, and to my knowledge this is a rare disease. It all started in 2007 she started having eye pain in her left eye, and her…

  • I am an NMO miracle

    I am an NMO miracle

    Eight years ago at the age of 52 I was diagnosed with NMO. I became fully quadriplegic before I was able to be turned around by God’s grace, lots of determination and the fine work of my physician and care team. When looking back, I see several hints that I might be prone to, or…