Patients

“Congratulations Lucy Mutton and Annabelle Moult for raising approximately £3,000 for GJCF and NMO research at London’s Blenheim Triathlon in on June 8! Lucy’s finish time: 1hr 48 minutes Annabelle’s Story Me My name is Annabelle Moult, I was born on the 5th August 1982, and I live with my Husband in Buckinghamshire UK. What…

A strange title you may think, but it is true. Life has thrown you a bad hand, and it does suck, but you have to ensure you keep smiling and laughing!! Just think for any disabled or able bodied person the day they sit on the couch stuffing their faces and doing nothing makes them…

I am a 50 y.o. living with NMO for the last 13 years. Was not getting good treatment in California so have been researching for the last 3 years and am finally getting into Johns Hopkins in September and into Vanderbilt University Medical Center in August. When I told my doctor in California, he just…

Hi everyone my name is Micky i am a 38 year old father of 2,living in Norway. 1 My story began in 2007 when i lost the feeling in my left thigh. It was not at all painful so i didnt visit my doctor to check it out and regained feeking a couple of months…

My journey began October 4, 2012, but let me back up to three days prior to my symptoms. It was a Monday, I wasn’t feeling well and had a strange mix of a respiratory and gastro-intestinal virus of some sort. It lasted for about 24 hours. Went back to work on Tuesday. Felt a little…

My story starts in April, 2009. One day while I was on a class trip to Washington, DC I woke up with a very bad headache and blurred vision. When I got home, I went to the ophthalmologist, who sent me directly to the emergency room because my optic discs where very swollen. I spent…

Misdiagnosed for almost 10 years and was taking wrong medication that could harm me. Was told years ago instead of a diagnosis of Multiple sclerosis, I instead might have a disease called Devics Disease due to my worsening symptoms . Mentioned to three different neurologist’s and hospital neurologist’s I have seen who blew me off…

Hello All, it has been so great to have the opportunity to read the many stories and hurdles many of you have shared. I wanted to ask if any one has had the same type situation or simliar conditions. I am told I have NMO. I do not have any eye involvement, nor do I…

” My first symptoms of NMO was on Dec 22, 2013 with optic neuritis. I was eventually diagnosed in April 2014, and started imuran and prednisone after my second attack of optic neuritis. It is only been 4 months since starting treatment and I realize that it is totally unpredictable. I am praying and trusting…

I first became very sick in August of 2009 dealing with various symptoms prior to my 2010 diagnosis of Neuromyelitis Optica (NMO). Serious symptoms of NMO lasted for about ten months; I was first unable to digest food, had loss of vision, and was temporarily paralyzed and dependent on wheelchairs and walker. I spent 10…

It has been over 2 years now when i became diagnosed with Neuromyelitis Optica (NMO). I like to refer to it as my Independence Day. Neuromyelitis Optica (NMO) is NOT Multiple Sclerosis! NMO is a rare, usually relapsing, inflammatory demyelinating disorder that primarily targets the optic nerve and the spinal cord. That being said, NMO…

I was finishing my last two years of high school, cramming as many academic courses into my workload as I could, not to mention multiple extracurricular activities and working at a local pizza shop. I was the perfect example of the shiny student off to bigger and better things than the small country town where…