• Living with NMO

    Living with NMO

    I woke up one morning feeling as if the room was spinning. This originated in 2012. I went to the ER and was given a shot of steroid and benedryl and sent home. I was told it sounds very similar to vertigo. I felt like myself two days later. In 2014 I woke up feeling…

  • Lost in Paradise

    Lost in Paradise

    Aloha! I was diagnosed with N.M.O. on Aug of 2014. Was somewhat retiring, when I started helping a friend run a paintball field. After about ten years of working there, I was hit below my right ear, near my neck and spine. 30 min after I left the field, my right arm started to go numb. Then…

  • Finally After All These Years A Diagnosis

    Finally After All These Years A Diagnosis

    It has been a very tough frustrating road.  In 1996 I was walking down the hallway at work and just fell over to the left sideways and hit the wall. This started a chain of events that I will never forget. I was sent to an ENT doctor who said I had Vertigo but NOT…

  • Diagnosed maybe NMO

    Diagnosed maybe NMO

    Hello All, it has been so great to have the opportunity to read the many stories and hurdles many of you have shared. I wanted to ask if any one has had the same type situation or simliar conditions. I am told I have NMO. I do not have any eye involvement, nor do I…

  • Things I have learned

    Things I have learned

    ” My first symptoms of NMO was on Dec 22, 2013 with optic neuritis. I was eventually diagnosed in April 2014, and started imuran and prednisone after my second attack of optic neuritis. It is only been 4 months since starting treatment and I realize that it is totally unpredictable. I am praying and trusting…

  • NMO and Breast Cancer!

    NMO and Breast Cancer!

    I first became very sick in August of 2009 dealing with various symptoms prior to my 2010 diagnosis of Neuromyelitis Optica (NMO). Serious symptoms of NMO lasted for about ten months; I was first unable to digest food, had loss of vision, and was temporarily paralyzed and dependent on wheelchairs and walker. I spent 10…

  • My Independence Day….What you need to know!

    My Independence Day….What you need to know!

    It has been over 2 years now when i became diagnosed with Neuromyelitis Optica (NMO). I like to refer to it as my Independence Day. Neuromyelitis Optica (NMO) is NOT Multiple Sclerosis! NMO is a rare, usually relapsing, inflammatory demyelinating disorder that primarily targets the optic nerve and the spinal cord. That being said, NMO…

  • This is only the start of my story

    This is only the start of my story

    I was finishing my last two years of high school, cramming as many academic courses into my workload as I could, not to mention multiple extracurricular activities and working at a local pizza shop. I was the perfect example of the shiny student off to bigger and better things than the small country town where…

  • What do you mean??

    What do you mean??

    I was diagnosed with a form of MS in 1999 at the age of 19. I was by no means surprised by the diagnosis because my mother had been diagnosed with it in 1990. However, my symptoms were not textbook to say the least. I have gone through about 20 bouts of optic neuritis with…

  • My NMO Diagnosis in Canada

    My NMO Diagnosis in Canada

    Sometimes I think I could write a book about my story with NMO. I was 21 years old at the time, and it was the end of summer before I was ready to start my third year of university. I woke up one day and noticed that I was dragging my left leg around, it…

  • I was diagnosed in June 2013

    I was diagnosed in June 2013

    I was diagnosed in June 2013. The first attack occurred in 2005 after the birth of my daughter in Feb. my right eye got very swollen & Dr.s could not figure things out. I went to a few specialists and was getting clue to having surgery. Finally, a Russian Dr. Stated it was a clog…

  • My NMO Journey

    My NMO Journey

    MY NMO JOURNEY I was once a woman who felt she could tackle anything that came her way. I lost my husband 13 years ago and had to go out and find new employment. He was a Pastor and I ran our Christian school. After being 30 years out of the work force it was…