Patients

In October of 2010, just weeks shy of my 40th birthday I rode a 115 mile bike ride in the Nevada desert. It was the most extraordinary physical thing I have ever done, and at the finish line I scared my husband by bursting into tears. I was just so overwhelmed at what I’d been…

Our 13 year old daughter, Annie, was diagnosed with NMO almost a year ago. Her first visit to the hospital was on February 7, 2013. We took her that day, because we thought she had a really nasty stomach flu. She had been vomiting for five days straight and could not keep anything down. We…

December 2004- I was a typical 22 year old college student, getting ready for final exams and anticipating heading home for the holiday season to spend time with my family and friends. I was feeling a bit under the weather, typical flu like symptoms and therefore I didn’t put too much mind to my illness.…

I am 28 years old, a single mom to a beautiful 3 year old daughter and I own my very own styling business. I have done hair and make up starting in my small hometown of WV and it took me as far as LA. All of these things define me but not as much…

My life changed on March 21st 2011 when this horrific disease attacked me. I had just come back from the west coast of Florida for Spring Break with my family when I noticed I was having some back pain. I had run on the beach everyday with my sister so I attributed it to that.…

“Congratulations Lucy Mutton and Annabelle Moult for raising approximately £3,000 for GJCF and NMO research at London’s Blenheim Triathlon in on June 8! Lucy’s finish time: 1hr 48 minutes Annabelle’s Story Me My name is Annabelle Moult, I was born on the 5th August 1982, and I live with my Husband in Buckinghamshire UK. What…

A strange title you may think, but it is true. Life has thrown you a bad hand, and it does suck, but you have to ensure you keep smiling and laughing!! Just think for any disabled or able bodied person the day they sit on the couch stuffing their faces and doing nothing makes them…

I am a 50 y.o. living with NMO for the last 13 years. Was not getting good treatment in California so have been researching for the last 3 years and am finally getting into Johns Hopkins in September and into Vanderbilt University Medical Center in August. When I told my doctor in California, he just…

Hi everyone my name is Micky i am a 38 year old father of 2,living in Norway. 1 My story began in 2007 when i lost the feeling in my left thigh. It was not at all painful so i didnt visit my doctor to check it out and regained feeking a couple of months…

My journey began October 4, 2012, but let me back up to three days prior to my symptoms. It was a Monday, I wasn’t feeling well and had a strange mix of a respiratory and gastro-intestinal virus of some sort. It lasted for about 24 hours. Went back to work on Tuesday. Felt a little…

My story starts in April, 2009. One day while I was on a class trip to Washington, DC I woke up with a very bad headache and blurred vision. When I got home, I went to the ophthalmologist, who sent me directly to the emergency room because my optic discs where very swollen. I spent…

Misdiagnosed for almost 10 years and was taking wrong medication that could harm me. Was told years ago instead of a diagnosis of Multiple sclerosis, I instead might have a disease called Devics Disease due to my worsening symptoms . Mentioned to three different neurologist’s and hospital neurologist’s I have seen who blew me off…