Patients

My journey began October 4, 2012, but let me back up to three days prior to my symptoms. It was a Monday, I wasn’t feeling well and had a strange mix of a respiratory and gastro-intestinal virus of some sort. It lasted for about 24 hours. Went back to work on Tuesday. Felt a little…

My story starts in April, 2009. One day while I was on a class trip to Washington, DC I woke up with a very bad headache and blurred vision. When I got home, I went to the ophthalmologist, who sent me directly to the emergency room because my optic discs where very swollen. I spent…

Misdiagnosed for almost 10 years and was taking wrong medication that could harm me. Was told years ago instead of a diagnosis of Multiple sclerosis, I instead might have a disease called Devics Disease due to my worsening symptoms . Mentioned to three different neurologist’s and hospital neurologist’s I have seen who blew me off…

Hello All, it has been so great to have the opportunity to read the many stories and hurdles many of you have shared. I wanted to ask if any one has had the same type situation or simliar conditions. I am told I have NMO. I do not have any eye involvement, nor do I…

” My first symptoms of NMO was on Dec 22, 2013 with optic neuritis. I was eventually diagnosed in April 2014, and started imuran and prednisone after my second attack of optic neuritis. It is only been 4 months since starting treatment and I realize that it is totally unpredictable. I am praying and trusting…

I first became very sick in August of 2009 dealing with various symptoms prior to my 2010 diagnosis of Neuromyelitis Optica (NMO). Serious symptoms of NMO lasted for about ten months; I was first unable to digest food, had loss of vision, and was temporarily paralyzed and dependent on wheelchairs and walker. I spent 10…

It has been over 2 years now when i became diagnosed with Neuromyelitis Optica (NMO). I like to refer to it as my Independence Day. Neuromyelitis Optica (NMO) is NOT Multiple Sclerosis! NMO is a rare, usually relapsing, inflammatory demyelinating disorder that primarily targets the optic nerve and the spinal cord. That being said, NMO…

I was finishing my last two years of high school, cramming as many academic courses into my workload as I could, not to mention multiple extracurricular activities and working at a local pizza shop. I was the perfect example of the shiny student off to bigger and better things than the small country town where…

I was diagnosed with a form of MS in 1999 at the age of 19. I was by no means surprised by the diagnosis because my mother had been diagnosed with it in 1990. However, my symptoms were not textbook to say the least. I have gone through about 20 bouts of optic neuritis with…

Sometimes I think I could write a book about my story with NMO. I was 21 years old at the time, and it was the end of summer before I was ready to start my third year of university. I woke up one day and noticed that I was dragging my left leg around, it…

I was diagnosed in June 2013. The first attack occurred in 2005 after the birth of my daughter in Feb. my right eye got very swollen & Dr.s could not figure things out. I went to a few specialists and was getting clue to having surgery. Finally, a Russian Dr. Stated it was a clog…

MY NMO JOURNEY I was once a woman who felt she could tackle anything that came her way. I lost my husband 13 years ago and had to go out and find new employment. He was a Pastor and I ran our Christian school. After being 30 years out of the work force it was…