Patients

My name is Kimberly. I started this journey in the summer of 1996. Water from the sprinkler felt hot on my legs. It actually felt like it was burning. Then I noticed that my legs were numb so I went to the doctor. The first doctor I saw asked me a bunch of questions….anything bad…

Hello my name is Cathy, and I have a 9yr old daughter named Alicia whom was just recently diagnosed with NMO in Nov of 2011. We live here in Colorado, and to my knowledge this is a rare disease. It all started in 2007 she started having eye pain in her left eye, and her…

Eight years ago at the age of 52 I was diagnosed with NMO. I became fully quadriplegic before I was able to be turned around by God’s grace, lots of determination and the fine work of my physician and care team. When looking back, I see several hints that I might be prone to, or…

In October of 2010, just weeks shy of my 40th birthday I rode a 115 mile bike ride in the Nevada desert. It was the most extraordinary physical thing I have ever done, and at the finish line I scared my husband by bursting into tears. I was just so overwhelmed at what I’d been…

Our 13 year old daughter, Annie, was diagnosed with NMO almost a year ago. Her first visit to the hospital was on February 7, 2013. We took her that day, because we thought she had a really nasty stomach flu. She had been vomiting for five days straight and could not keep anything down. We…

December 2004- I was a typical 22 year old college student, getting ready for final exams and anticipating heading home for the holiday season to spend time with my family and friends. I was feeling a bit under the weather, typical flu like symptoms and therefore I didn’t put too much mind to my illness.…

I am 28 years old, a single mom to a beautiful 3 year old daughter and I own my very own styling business. I have done hair and make up starting in my small hometown of WV and it took me as far as LA. All of these things define me but not as much…

My life changed on March 21st 2011 when this horrific disease attacked me. I had just come back from the west coast of Florida for Spring Break with my family when I noticed I was having some back pain. I had run on the beach everyday with my sister so I attributed it to that.…

“Congratulations Lucy Mutton and Annabelle Moult for raising approximately £3,000 for GJCF and NMO research at London’s Blenheim Triathlon in on June 8! Lucy’s finish time: 1hr 48 minutes Annabelle’s Story Me My name is Annabelle Moult, I was born on the 5th August 1982, and I live with my Husband in Buckinghamshire UK. What…

A strange title you may think, but it is true. Life has thrown you a bad hand, and it does suck, but you have to ensure you keep smiling and laughing!! Just think for any disabled or able bodied person the day they sit on the couch stuffing their faces and doing nothing makes them…

I am a 50 y.o. living with NMO for the last 13 years. Was not getting good treatment in California so have been researching for the last 3 years and am finally getting into Johns Hopkins in September and into Vanderbilt University Medical Center in August. When I told my doctor in California, he just…

Hi everyone my name is Micky i am a 38 year old father of 2,living in Norway. 1 My story began in 2007 when i lost the feeling in my left thigh. It was not at all painful so i didnt visit my doctor to check it out and regained feeking a couple of months…