Stories

This link is to my daughters first video about her NMO story. Since this video she has had a difficult relapse and she is working on making a follow up video with more detail.  Thank you for your work, without it I don’t know where we would be today.  We are so thankful for the…

I woke up one morning feeling as if the room was spinning. This originated in 2012. I went to the ER and was given a shot of steroid and benedryl and sent home. I was told it sounds very similar to vertigo. I felt like myself two days later. In 2014 I woke up feeling…

Hello ! I am the Drita Zekaj I want to tell my painful history. I am 32 years old and 3 years, and I suffer from this terrible disease. it mielite encefalea disease has destroyed my life in all of the ways we have come to function, outside the body all parts. My life  has become a…

Hello everyone My name is joyce. I was diagnosed of nmo 2014. I have been going through lots of things since then. New life is here. I would like to share experiences with you. It’s  very nice to join .

Aloha! I was diagnosed with N.M.O. on Aug of 2014. Was somewhat retiring, when I started helping a friend run a paintball field. After about ten years of working there, I was hit below my right ear, near my neck and spine. 30 min after I left the field, my right arm started to go numb. Then…

It has been a very tough frustrating road.  In 1996 I was walking down the hallway at work and just fell over to the left sideways and hit the wall. This started a chain of events that I will never forget. I was sent to an ENT doctor who said I had Vertigo but NOT…

MY NMO JOURNEY I was once a woman who felt she could tackle anything that came her way. I lost my husband 13 years ago and had to go out and find new employment. He was a Pastor and I ran our Christian school. After being 30 years out of the work force it was…

I was finishing my last two years of high school, cramming as many academic courses into my workload as I could, not to mention multiple extracurricular activities and working at a local pizza shop. I was the perfect example of the shiny student off to bigger and better things than the small country town where…

I was diagnosed with a form of MS in 1999 at the age of 19. I was by no means surprised by the diagnosis because my mother had been diagnosed with it in 1990. However, my symptoms were not textbook to say the least. I have gone through about 20 bouts of optic neuritis with…

I first became very sick in August of 2009 dealing with various symptoms prior to my 2010 diagnosis of Neuromyelitis Optica (NMO). Serious symptoms of NMO lasted for about ten months; I was first unable to digest food, had loss of vision, and was temporarily paralyzed and dependent on wheelchairs and walker. I spent 10…

Hello All, it has been so great to have the opportunity to read the many stories and hurdles many of you have shared. I wanted to ask if any one has had the same type situation or simliar conditions. I am told I have NMO. I do not have any eye involvement, nor do I…