NMO Stories

My Fighting Princess

My daughter Briannen is now 12 years old and this is her story – I would like to say this is the first time i have written it all down and sorry it is to long lol She was a healty child until……. December 2011 Just before christmas Briannen got really bad tonsillitis with high…
Martin’s Story

One night my husband went to bed a healthy 41 year old then found himself next morning in intensive care paralyzed from the jaw down unable to speak or breathe for himself. Three weeks later we had a diagnosis – NMO. Three years later (one year in hospital) he is home with his family thanks…
Kenneth Clarke

In 1975 I was a 41 year old career oriented business man with athletic skills and aggressive personal goals. Until, one Sunday morning following an active day of skiing I awoke with a nagging pain in my left eye and blurred vision. I first attributed these symptoms as effects of the stress of activities the…
Better days ahead… a day in the life of Jesus & Maria

Better days ahead… “Because I am still in love with you… I want to see you dance again…” Today I danced with Maria… ! Just the way it is… once you realize your new way of life there is no other choice but to adapt and continue… living day to day, step by step, enjoying…
And give me the wisdom…

My name is Francisco Garcia. I wanted to share my story. I am really bad with dates. So, some of the information may not be chronologically perfect, but my feelings and experiences are engraved in my memories like it was yesterday. I will start when me and my wife, arrived in Texas in October of…
My Ester

My daughter Nadia Santos is 26 years old. She is a wife and a mother of a three year old. Nadia’s symptoms began in September in and out of emergency rooms, Nadia’s symptoms continued to progress from weakness, nausea, vomiting, fever, blurry vision and loss of motor skills on her entire right side. The left…
From MS to NMO – a mysterious journey

My name is Kimberly. I started this journey in the summer of 1996. Water from the sprinkler felt hot on my legs. It actually felt like it was burning. Then I noticed that my legs were numb so I went to the doctor. The first doctor I saw asked me a bunch of questions….anything bad…
I am an NMO miracle

Eight years ago at the age of 52 I was diagnosed with NMO. I became fully quadriplegic before I was able to be turned around by God’s grace, lots of determination and the fine work of my physician and care team. When looking back, I see several hints that I might be prone to, or…
Annie’s NMO Journey

Our 13 year old daughter, Annie, was diagnosed with NMO almost a year ago. Her first visit to the hospital was on February 7, 2013. We took her that day, because we thought she had a really nasty stomach flu. She had been vomiting for five days straight and could not keep anything down. We…
Stem Cell Transplant

I am 28 years old, a single mom to a beautiful 3 year old daughter and I own my very own styling business. I have done hair and make up starting in my small hometown of WV and it took me as far as LA. All of these things define me but not as much…
Annabelle Moult – My NMO Story

“Congratulations Lucy Mutton and Annabelle Moult for raising approximately £3,000 for GJCF and NMO research at London’s Blenheim Triathlon in on June 8! Lucy’s finish time: 1hr 48 minutes Annabelle’s Story Me My name is Annabelle Moult, I was born on the 5th August 1982, and I live with my Husband in Buckinghamshire UK. What…
NMO Patient seeking Clinical Trials and a place to live

I am a 50 y.o. living with NMO for the last 13 years. Was not getting good treatment in California so have been researching for the last 3 years and am finally getting into Johns Hopkins in September and into Vanderbilt University Medical Center in August. When I told my doctor in California, he just…

NMO STORIES AROUND THE GLOBE