NMO STORIES AROUND THE GLOBE

Hi Everyone, My name is Maureen Smith and I am 33 years old. My story begins back in Late January early February. My symptoms began with vomiting and hiccups and not a little bit of either it was ALOT. Within 3 weeks I had lost about 25 lbs and was throwing up about 15-20 times…

Over the past 4.5 years I have had 9 major surgeries hips replaced, hysterectomy, spinal surgeries, and blood transfusions, transforming my healthy, fit, body into a shell of what it used to be:( I was diagnosed with MS initially in APRIL of 2016 after a year of intense physical therapy at Barrow Neurological institute. The…

My name is Mileidys Wojciechowski. I am  Cuban and I live in Florida, U.S.A. When I lived in Cuba in 1992, I saw a movie that impacted me greatly. The name of the movie was Lorenzo’s Oil. This film is based on true events. In this movie, the parents of a 5-year-old boy named Lorenzo,…

Hello, This is another part of Megan Woolf’s NMO story.(link below) Our hearts are full of gratitude for Guthy-Jackson and all of the people working towards approved treatments and a cure for NMO. Thank you, truly. The Woolf Family https://youtu.be/pnCp1wxkrLI https://youtu.be/pnCp1wxkrLI

Hello, my name is Heather Reynolds and I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise I took for my 30th birthday. And to think unlike most others, I was looking forward to the big…

October 3rd, 2008. It’s been 8 years ago that I woke up and could NOT see anything. Marks the days that my health would be slowly going downhill. Getting rushed to the hospital, ran under different blood tests, doing numerous CT scans and countless MRIs, was just the beginning for me having more questions than…

This link is to my daughters first video about her NMO story. Since this video she has had a difficult relapse and she is working on making a follow up video with more detail.  Thank you for your work, without it I don’t know where we would be today.  We are so thankful for the…

Hello everyone My name is joyce. I was diagnosed of nmo 2014. I have been going through lots of things since then. New life is here. I would like to share experiences with you. It’s  very nice to join .

Hello ! I am the Drita Zekaj I want to tell my painful history. I am 32 years old and 3 years, and I suffer from this terrible disease. it mielite encefalea disease has destroyed my life in all of the ways we have come to function, outside the body all parts. My life  has become a…

I woke up one morning feeling as if the room was spinning. This originated in 2012. I went to the ER and was given a shot of steroid and benedryl and sent home. I was told it sounds very similar to vertigo. I felt like myself two days later. In 2014 I woke up feeling…

Aloha! I was diagnosed with N.M.O. on Aug of 2014. Was somewhat retiring, when I started helping a friend run a paintball field. After about ten years of working there, I was hit below my right ear, near my neck and spine. 30 min after I left the field, my right arm started to go numb. Then…

It has been a very tough frustrating road.  In 1996 I was walking down the hallway at work and just fell over to the left sideways and hit the wall. This started a chain of events that I will never forget. I was sent to an ENT doctor who said I had Vertigo but NOT…