Patients
In My Words | Sandra Adda
For Sandra, NMO patient advocacy is not a job, or a chore, it is a way of life. Her illness has deepened both her resilience and her compassion. She loves helping others achieve their full potential.
Read MoreMysterious and challenging life experience. Living with NMSOD
My journey began with a non definitive diagnosed illness, I have learned NMSOD mimics other illnesses from lupus to MS.…
Read MoreRare disease has taught me to live one day at a time
My life changed a few months ago when I heard doctors tell me they had a diagnosis for every weird…
Read MoreI’ve had NMO 12 years
I was diagnosed with NMO August 2nd, 2009. It all started in my opinion nerve in my left eye. Every…
Read MoreMonica’s Story
My story with NMO. Im 43 years old and was diagnosed with lupus about 12 years ago. I’ve since then…
Read MoreDiagnosed 5-19-2021
My story begins on February 16th, 2021. I have spent 40 years in public service and was approximately 2 months…
Read MoreOn a long quest to cure myself (22F, Southeast Asian)
Where I’m from, our medical literacy rates just shyly reach 1%. Our country doesn’t get involved with much R&D, especially…
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Well…….This is Inconvenient
Diagnosis: AQP4-IgG seronegative NMOSD (NMOSD with no antibodies) So here’s my story….. Buckle up! First, some background; I’m a Hispanic…
Read MoreHow? I was SO healthy!
For a year I was super healthy, dropped 100lbs and was well on my way to my dream career. In…
Read MoreA new Journey with NMO
Hello world of NMO Around August 2019 changes started happening in my body that were foreign to me. By process…
Read MoreFamily of 4
My name is Craig, and I live in Denver, CO these days. I have two beautiful children, a soon to…
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