• Better late than never

    It all started around October 2013 I had a bad case of hiccups and vomiting I was admitted to the hospital because I could not eat or keep fluids down . This lasted for about 15 days and resolved on it’s on then every year after that I puke have these same symptoms. Doctors at…

  • Everything changing at age 15

    It all started on September 29, 2019 I had a severe headache and pain in my eyes. As a few days went by i started to realize that my vision had gotten blurry in my left eye. My mom took me to the eye doctor and they sent us straight to the ER thinking I…

  • Every story is different… Blessed with all the support system

    Every story is different…It all happened 3.5 years back, when I was 25 years old, being a young budding General Surgeon with all the hope of treating my patients with my hands.  It was a routine day, woke up to go to hospital where I was working, but I noticed pain in my eye, took…

  • Living With NMO

    One  Wednesday morning in July 2019, I woke up with vision loss. I went to look in my bathroom mirror because I thought maybe I was still asleep.  After covering my right eye, I couldn’t see anything from my left eye.  I immediately called my eye doctor to schedule an appointment.  That Monday,  the eye…

  • Still cooking¡

    My NMO came on very gradual, years back my right foot started to feel numb, then it crept up my shin, my knee, then the same to my left leg. I am a chef and ran a catering company so I spent crazy long hours on my feet and I wrote it off as it…

  • my story – living with nmo – tears and laughter

    It is 4am.  It is not uncommon to wake up at this time.  In fact, this is an everday occurrance.  It is either my friend and pain-buddy, Skye, or myself that wakes up with the need to go to the toilet. My head is thick.  I cannot even think properly.  The pain is severe.  My…

  • My New Normal

    My story started after having a flu shot. I worked in the pharmacy for years so fyou got them so you wouldn’t get sick.  I receieved my shot on Oct 1st , 2015. Week later I got sick with flu like symptoms, but flu test was negative. Within 4 days I felt better.  I notice…

  • Surviving NMO in the Colorado Rockies

    Surviving NMO in the Colorado Rockies

    Like so many of my NMO brothers and sisters, I was misdiagnosed prior to being diagnosed with NMO. For about a year I was diagnosed as having multiple sclerosis, before getting the right diagnosis of Neuromyelitis Optica was made. During that time, I was put on medication for Multiple Sclerosis, which didn’t work and only…

  • NMO Journey

    During summer of 2009 I visited my Neurologist as always for my routine Migraine check in. My Migraines were worse and I was throwing up all the time, besides my Rt leg was dragging sometimes. He was not alarmed by that. He just increased my migraine meds and said “don’t worry about the dragging because…

  • A new chapter in my life

    This is how my life changed . I was  51 years old and visiting colleges with my daughter . I came home and had a bad cough which  I thought I caught from being on the plane.  Then  the  next day I couldn’t see.  I spent the next week in the hospital having every test…

  • Figuring out my condition

    I lost my vision in August of 2019 I want to an ophthalmologist who said I had no right has got a second opinion and went to a neuro ophthalmologist who said I had optic neuritis I began to go through a series of tests the next test was a spinal tap which put me…

  • Gradual NMOSD

    I have NMOSD neuromeyeltis optica spectrum disorder. I gues you can say my NMOSD/TM is idiopathic they never found a reason why I have or got this, just came on. I am not Igg positive but my lesion goes from my T-6 to T-11 so it cannot be MS as I was originally diagnosed. I…