Patients

Hello everyone My name is joyce. I was diagnosed of nmo 2014. I have been going through lots of things since then. New life is here. I would like to share experiences with you. It’s  very nice to join .

Aloha! I was diagnosed with N.M.O. on Aug of 2014. Was somewhat retiring, when I started helping a friend run a paintball field. After about ten years of working there, I was hit below my right ear, near my neck and spine. 30 min after I left the field, my right arm started to go numb. Then…

It has been a very tough frustrating road.  In 1996 I was walking down the hallway at work and just fell over to the left sideways and hit the wall. This started a chain of events that I will never forget. I was sent to an ENT doctor who said I had Vertigo but NOT…

I first became very sick in August of 2009 dealing with various symptoms prior to my 2010 diagnosis of Neuromyelitis Optica (NMO). Serious symptoms of NMO lasted for about ten months; I was first unable to digest food, had loss of vision, and was temporarily paralyzed and dependent on wheelchairs and walker. I spent 10…

In 1975 I was a 41 year old career oriented business man with athletic skills and aggressive personal goals. Until, one Sunday morning following an active day of skiing I awoke with a nagging pain in my left eye and blurred vision. I first attributed these symptoms as effects of the stress of activities the…

Hello All, it has been so great to have the opportunity to read the many stories and hurdles many of you have shared. I wanted to ask if any one has had the same type situation or simliar conditions. I am told I have NMO. I do not have any eye involvement, nor do I…

My story starts in April, 2009. One day while I was on a class trip to Washington, DC I woke up with a very bad headache and blurred vision. When I got home, I went to the ophthalmologist, who sent me directly to the emergency room because my optic discs where very swollen. I spent…

Hi everyone my name is Micky i am a 38 year old father of 2,living in Norway. 1 My story began in 2007 when i lost the feeling in my left thigh. It was not at all painful so i didnt visit my doctor to check it out and regained feeking a couple of months…

A strange title you may think, but it is true. Life has thrown you a bad hand, and it does suck, but you have to ensure you keep smiling and laughing!! Just think for any disabled or able bodied person the day they sit on the couch stuffing their faces and doing nothing makes them…

My life changed on March 21st 2011 when this horrific disease attacked me. I had just come back from the west coast of Florida for Spring Break with my family when I noticed I was having some back pain. I had run on the beach everyday with my sister so I attributed it to that.…

December 2004- I was a typical 22 year old college student, getting ready for final exams and anticipating heading home for the holiday season to spend time with my family and friends. I was feeling a bit under the weather, typical flu like symptoms and therefore I didn’t put too much mind to my illness.…

In October of 2010, just weeks shy of my 40th birthday I rode a 115 mile bike ride in the Nevada desert. It was the most extraordinary physical thing I have ever done, and at the finish line I scared my husband by bursting into tears. I was just so overwhelmed at what I’d been…