NMO Stories

Living With NMO

One Wednesday morning in July 2019, I woke up with vision loss. I went to look in my bathroom mirror because I thought maybe I was still asleep. After covering my right eye, I couldn’t see anything from my left eye. I immediately called my eye doctor to schedule an appointment. That Monday, the eye…
Still cooking¡

My NMO came on very gradual, years back my right foot started to feel numb, then it crept up my shin, my knee, then the same to my left leg. I am a chef and ran a catering company so I spent crazy long hours on my feet and I wrote it off as it…
my story – living with nmo – tears and laughter

It is 4am. It is not uncommon to wake up at this time. In fact, this is an everday occurrance. It is either my friend and pain-buddy, Skye, or myself that wakes up with the need to go to the toilet. My head is thick. I cannot even think properly. The pain is severe. My…
My New Normal

My story started after having a flu shot. I worked in the pharmacy for years so fyou got them so you wouldn’t get sick. I receieved my shot on Oct 1st , 2015. Week later I got sick with flu like symptoms, but flu test was negative. Within 4 days I felt better. I notice…
Surviving NMO in the Colorado Rockies

Like so many of my NMO brothers and sisters, I was misdiagnosed prior to being diagnosed with NMO. For about a year I was diagnosed as having multiple sclerosis, before getting the right diagnosis of Neuromyelitis Optica was made. During that time, I was put on medication for Multiple Sclerosis, which didn’t work and only…
NMO Journey

During summer of 2009 I visited my Neurologist as always for my routine Migraine check in. My Migraines were worse and I was throwing up all the time, besides my Rt leg was dragging sometimes. He was not alarmed by that. He just increased my migraine meds and said “don’t worry about the dragging because…
A new chapter in my life

This is how my life changed . I was 51 years old and visiting colleges with my daughter . I came home and had a bad cough which I thought I caught from being on the plane. Then the next day I couldn’t see. I spent the next week in the hospital having every test…
Figuring out my condition

I lost my vision in August of 2019 I want to an ophthalmologist who said I had no right has got a second opinion and went to a neuro ophthalmologist who said I had optic neuritis I began to go through a series of tests the next test was a spinal tap which put me…
Gradual NMOSD

I have NMOSD neuromeyeltis optica spectrum disorder. I gues you can say my NMOSD/TM is idiopathic they never found a reason why I have or got this, just came on. I am not Igg positive but my lesion goes from my T-6 to T-11 so it cannot be MS as I was originally diagnosed. I…
Love Conquers NMO
Active Duty Navy Sailor Discovered NMO

I was a 26-year-old working in the Pentagon in the Navy Executive Dining Facility. I was Active Duty Navy for almost 8 years. October 18, 2017, I had a colonoscopy because I was losing weight, bowels had blood and mucus coming out. After, that I started having tingling in my thighs and few fingers. I…
Decoding My Medical Mystery

The last two months have been full of bloodwork, medicine, needles. On the day before mother’s day (May 12, 2018), I was admitted from my 3rd ER visit in 6 weeks for what we thought was a MS flare. I had previously had a bout of Optic Neuritis (2016), weakness and tingling in my extremities-…

NMO STORIES AROUND THE GLOBE