Patients

I was a merchandiser for a greeting card company. I had just been given some new accounts and a good raise. Not long after starting my new accounts, I had a bad bout of bronchitis that would not let go. It hung on for months. Not long after it started going away, a horrendous fatigue…

IT WASN’T SUPPOSED TO BE Companion to Robert Buchanon’s Story. 1. Medevac   A cobalt sky slowly grows lighter above the quiet Spanish airport and the edge of dawn reveals the silhouette of a Learjet primed on the tarmac to receive the stretcher that supports what I have suddenly become.  I am dazed by intravenous…

My NMOSD Story by Bob Buchanan While traveling in Spain in May 2013, I was overcome with nausea, vomiting, and seizure-like spells consisting of serious bradycardia, tonic stiffening, and loss of consciousness. I vomited every hour for the first day and also developed intractable hiccups that lasted 24/7 for many weeks.  I was completely helpless in…

Hi Everyone, My name is Maureen Smith and I am 33 years old. My story begins back in Late January early February. My symptoms began with vomiting and hiccups and not a little bit of either it was ALOT. Within 3 weeks I had lost about 25 lbs and was throwing up about 15-20 times…

Over the past 4.5 years I have had 9 major surgeries hips replaced, hysterectomy, spinal surgeries, and blood transfusions, transforming my healthy, fit, body into a shell of what it used to be:( I was diagnosed with MS initially in APRIL of 2016 after a year of intense physical therapy at Barrow Neurological institute. The…

My name is Mileidys Wojciechowski. I am  Cuban and I live in Florida, U.S.A. When I lived in Cuba in 1992, I saw a movie that impacted me greatly. The name of the movie was Lorenzo’s Oil. This film is based on true events. In this movie, the parents of a 5-year-old boy named Lorenzo,…

Hello, This is another part of Megan Woolf’s NMO story.(link below) Our hearts are full of gratitude for Guthy-Jackson and all of the people working towards approved treatments and a cure for NMO. Thank you, truly. The Woolf Family https://youtu.be/pnCp1wxkrLI https://youtu.be/pnCp1wxkrLI

Hello, my name is Heather Reynolds and I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise I took for my 30th birthday. And to think unlike most others, I was looking forward to the big…

October 3rd, 2008. It’s been 8 years ago that I woke up and could NOT see anything. Marks the days that my health would be slowly going downhill. Getting rushed to the hospital, ran under different blood tests, doing numerous CT scans and countless MRIs, was just the beginning for me having more questions than…

This link is to my daughters first video about her NMO story. Since this video she has had a difficult relapse and she is working on making a follow up video with more detail.  Thank you for your work, without it I don’t know where we would be today.  We are so thankful for the…

I woke up one morning feeling as if the room was spinning. This originated in 2012. I went to the ER and was given a shot of steroid and benedryl and sent home. I was told it sounds very similar to vertigo. I felt like myself two days later. In 2014 I woke up feeling…

Hello ! I am the Drita Zekaj I want to tell my painful history. I am 32 years old and 3 years, and I suffer from this terrible disease. it mielite encefalea disease has destroyed my life in all of the ways we have come to function, outside the body all parts. My life  has become a…