Patients

Misdiagnosed for almost 10 years and was taking wrong medication that could harm me. Was told years ago instead of a diagnosis of Multiple sclerosis, I instead might have a disease called Devics Disease due to my worsening symptoms . Mentioned to three different neurologist’s and hospital neurologist’s I have seen who blew me off…

My journey began October 4, 2012, but let me back up to three days prior to my symptoms. It was a Monday, I wasn’t feeling well and had a strange mix of a respiratory and gastro-intestinal virus of some sort. It lasted for about 24 hours. Went back to work on Tuesday. Felt a little…

I am a 50 y.o. living with NMO for the last 13 years. Was not getting good treatment in California so have been researching for the last 3 years and am finally getting into Johns Hopkins in September and into Vanderbilt University Medical Center in August. When I told my doctor in California, he just…

“Congratulations Lucy Mutton and Annabelle Moult for raising approximately £3,000 for GJCF and NMO research at London’s Blenheim Triathlon in on June 8! Lucy’s finish time: 1hr 48 minutes Annabelle’s Story Me My name is Annabelle Moult, I was born on the 5th August 1982, and I live with my Husband in Buckinghamshire UK. What…

I am 28 years old, a single mom to a beautiful 3 year old daughter and I own my very own styling business. I have done hair and make up starting in my small hometown of WV and it took me as far as LA. All of these things define me but not as much…

Our 13 year old daughter, Annie, was diagnosed with NMO almost a year ago. Her first visit to the hospital was on February 7, 2013. We took her that day, because we thought she had a really nasty stomach flu. She had been vomiting for five days straight and could not keep anything down. We…

Eight years ago at the age of 52 I was diagnosed with NMO. I became fully quadriplegic before I was able to be turned around by God’s grace, lots of determination and the fine work of my physician and care team. When looking back, I see several hints that I might be prone to, or…

My name is Kimberly. I started this journey in the summer of 1996. Water from the sprinkler felt hot on my legs. It actually felt like it was burning. Then I noticed that my legs were numb so I went to the doctor. The first doctor I saw asked me a bunch of questions….anything bad…

My name is Francisco Garcia. I wanted to share my story. I am really bad with dates. So, some of the information may not be chronologically perfect, but my feelings and experiences are engraved in my memories like it was yesterday. I will start when me and my wife, arrived in Texas in October of…

My journey began in 1997 when I was just 17 years old but I didn’t know at that time. I had lost my vision in my left eye for about 5 days and I was given prednisone treatments to restore it. Over the years I did suffer with blurred vision at times but it would…

In my early 20’s I was working when I noticed I had a bruise as well as a pain in my abdomen area. It elt like I had been doing crunches, and since I hadn’t I was concerned. I went to the hospital where they ran numerous tests and discovered I had something called ITP.…

I was diagnosed with a form of MS in 1999 at the age of 19. I was by no means surprised by the diagnosis because my mother had been diagnosed with it in 1990. However, my symptoms were not textbook to say the least. I have gone through about 20 bouts of optic neuritis with…